CSC will be closed Thursday, November 15th due to inclement weather!
Our News

Our News

Shannon's story in her own voice..

(November 15, 2018)


November Cancer Awareness

(November 07, 2018)

November is Pancreatic, Lung, Stomach, Carcinoid Cancer and Caregiver Awareness Month
No one should have to face cancer alone.

Our all cancer monthly group gives people with cancer and/or their family and friends the opportunity to share resources, ideas to manage side effects, and provides a chance to get and give support to others. Join us the third Tuesday of each month from 10:00AM-11:30AM at Mercy South Cancer Care Center.

Join one of our weekly support groups, offered to people with a cancer diagnosis who are in active treatment, for the opportunity to share thoughts, feelings, and information. Together, group participants experience warmth, understanding, support, and learn how to manage stress. For more information on how to join a support group please call 314-238-2000.

Family and friends are welcome at our Ann Arenberg Pancreatic Cancer Monthly Group that meets the fourth Monday each month (December 17th due to Holiday) from NOON-1:30PM. Attendees exchange stories, treatment tips, and share concerns about quality of life, intensity of diagnosis, nutritional issues, and other effects of pancreatic cancer.

Our Lung Cancer Monthly Group provides a nurturing environment to learn about and discuss coping skills, disease management, and quality of life during and after treatment. This group meets the second Thursday of each month from 6:00PM-7:30PM.

On Wednesday, December 5th from 6:00PM-8:00PM, we will be holding a workshop called What You Should Know About Pulmonary Rehabilitation. This free workshop with Ravi P. Nayak, M.D., FCCP, Director, Division of Pulmonary, Critical Care and Sleep Medicine and Professor at Saint Louis University School of Medicine, provides fundamental information about pulmonary rehabilitation. Topics may include breathing techniques, medications, nutrition, relaxation, oxygen, how to do everyday tasks with less shortness of breath, and how to stay healthy and cope with changes in functioning. Dinner is provided and will start in the kitchen from 6:00-6:30.

Join the Cancer Experience Registry today to share your experiences, identify issues that impact your life, take surveys, access resources and learn from others who share your cancer journey. Make your voice heard in a special way, and help shape new programs, research, and policy for those living with cancer. Together we can improve cancer care and make a difference.

Need help after CSC St. Louis closes? To speak to a licensed counselor who can answer your questions and provide you with more resources on any type of cancer, call the cancer support helpline at 888-793-9355.

Caregivers need support too!

79% of caregivers have not had any formal training in caregiving.

The Cancer Support Community believes that people who care about someone with cancer can actively enhance the health and wellness of their loved one and their relationships, without neglecting their own personal needs. CSC aims to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community.

Caregivers are welcome to participate in any of our healthy lifestyle, stress management, education, and social activities. In addition, we invite caregivers to a twice monthly support group specifically for family and friends. This support group offers those supporting a person with cancer the opportunity to discuss common issues and learn new ways to cope with their individual stress as well as ways to support their loved ones living with cancer. For more information on how to join a support group please call 314-238-2000.


October Cancer Awareness

(October 26, 2018)

October is Breast and Liver Cancer Awareness Month.

Join one of our weekly support groups, offered to people with a cancer diagnosis who are in active treatment, for the opportunity to share thoughts, feelings, and information. Together, group participants experience warmth, understanding, support, and learn how to manage stress. For more information on how to join a support group please call 314-238-2000.

Our all cancer monthly group gives people with cancer and/or their family and friends the opportunity to share resources, ideas to manage side effects, and provides a chance to get and give support to others. Join us the third Tuesday of each month from 1:00PM-2:30PM at Mercy South Cancer Care Center.

Cancer Support Community offers a breast cancer monthly group the second Wednesday of each month from 5:30PM-7:00PM. This is an educational and emotionally safe group, in collaboration with Mercy, for women newly diagnosed, survivors, along with female family and friends. This group meets at David C. Pratt Cancer Center.

We can help you make a decision about treatment that is right for you – through Open to Options, an individualized decision support counseling program here at CSC. This program will help you; identify and organize your questions for your doctor, communicate in an organized manner with your medical team, and make decisions that best fit your personal desires and goals. Call us at 314-238-2000 to set up an appointment.

Join the Cancer Experience Registry today to share your experiences, identify issues that impact your life, access resources and learn from others who share your cancer journey. Make your voice heard in a special way, and help shape new programs, research, and policy for those living with Breast Cancer by joining the Breast Cancer Registry. Together we can improve cancer care and make a difference.

Looking for a way to stay connected and build a support community? Through MyLifeLine, you can create a personal webpage and update family and friends on how you’re doing, let loved ones know when your next appointment is, or learn more about your specific type of cancer. The mission of MyLifeLine is to empower cancer patients and caregivers to build an online support community to encourage connection, inspiration, and healing by receiving social, emotional and practical care from loved ones.

For more information, visit our Frankly Speaking About Cancer Series for a vast variety of publications on breast cancer and liver cancer.

Need help after CSC St. Louis closes? To speak to a licensed counselor who can answer your questions and provide you with more resources on any type of cancer, call the Cancer Support Helpline at 888-793-9355.


September Cancer Awareness

(September 27, 2018)

September is Gynecological, Leukemia/Lymphoma, Ovarian, Prostate, and Thyroid Cancer Awareness Month.

Join one of our weekly support groups, offered to people with a cancer diagnosis who are in active treatment, for the opportunity to share thoughts, feelings, and information. Together, group participants experience warmth, understanding, support, and learn how to manage stress. For more information on how to join a support group please call 314-238-2000.

Our all cancer monthly group gives people with cancer and/or their family and friends the opportunity to share resources, ideas to manage side effects, and provides a chance to get and give support to others. Join us the third Tuesday of each month from 1:00PM-2:30PM at Mercy South Cancer Care Center.

Cancer Support Community offers a gynecological cancers monthly group the third Monday of each month from 6:30PM-8:30PM. This group discusses nutrition, coping skills, fear of recurrence, intimacy challenges, and genetic concerns. For more information or support call us at 314-238-2000.

Cancer Support Community offers a prostate monthly group that features speakers and follow-up discussions on important topics such as treatment options, quality of life, incontinence, intimacy concerns, and fear of recurrence. Join us the first Thursday of each month from 6:30PM-8:00PM at David C. Pratt Cancer Center.

The Cancer Support Community invited people with Acute Myeloid Leukemia and their caregivers/loved ones to Frankly Speaking About Cancer: Acute Myeloid Leukemia. This free workshop featuring ways to help manage the physical and psychological effects of the disease and its treatment. The presenters are Dr. Shaun Donegan, Medical Director and Chief Oncology at Mercy South and CSC Program Manager, Kelly O’Neal, LCSW. This presentation will be offered on Facebook Live. For those who attend in person, dinner will be served from 6:00PM-6:30PM.

If you have Chronic Myeloid Leukemia, complete this worksheet to help you talk with your health care team about symptoms, treatments options, side effects, and getting the emotional and practical support you need. If you do not have CML, we can still help you make a decision about treatment that is right for you – through Open to Options, an individualized decision support counseling program here at CSC. This program will help you; identify and organize your questions for your doctor, communicate in an organized manner with your medical team, and make decisions that best fit your personal desires and goals. Call us at 314-238-2000 to set up an appointment.

Need help after CSC St. Louis closes? To speak to a licensed counselor who can answer your questions and provide you with more resources on any type of cancer, call the Cancer Support Helpline at 888-793-9355.


July Cancer Awareness

(July 31, 2018)

Empowered by knowledge, strengthened by action, and sustained by community.

Although sarcoma is sometimes known as the forgotten cancer, there are steps you can take to improve awareness so that patients and survivors don’t have to feel underrepresented or alone. The purpose of a cancer awareness month is to encourage awareness, education, support, research, drug development, and other resources available to improve the lives of those impacted by cancer. Below are just some of the resources that Cancer Support Community offers to those impacted by a cancer diagnosis.

Join the Cancer Experience Registry today to share your experiences, identify issues that impact your life and are important to you, access resources and learn from others who share your cancer journey. Together we can improve cancer care and make a difference.

Looking for a way to stay connected and build a support community? Through MyLifeLine, you can create a personal webpage and update family and friends on how you’re doing, let loved ones know when your next appointment is, or learn more about your specific type of cancer. The mission of MyLifeLine is to empower cancer patients and caregivers to build an online support community to encourage connection, inspiration, and healing by receiving social, emotional and practical care from loved ones.

CancerEd Online is Cancer Support Community’s newest interactive online educational program for cancer patients, survivors, and caregivers. Topics include self-advocacy, new ways of managing cancer care, precision medicine, clinical trials, tips for living well with cancer and more.

Join one of our weekly support groups, offered to people with a cancer diagnosis who are in active treatment, for the opportunity to share thoughts, feelings, and information. Together, group participants experience warmth, understanding, support, and learn how to manage stress. For more information on how to join a support group please call 314-238-2000.

Our all cancer monthly group gives people with cancer and/or their family and friends the opportunity to share resources, ideas to manage side effects, and provides a chance to get and give support to others. Join us the third Tuesday of each month from 1:00PM-2:30PM at St. Anthony’s Cancer Care Center.

Need help after CSC St. Louis closes? To speak to a licensed counselor who can answer your questions and provide you with more resources on any type of cancer, call the cancer support helpline at 888-793-9355.


June Cancer Awareness

(June 28, 2018)

Learn more about life after treatment

Cancer survivors are a growing population due to improved prevention, detection, and treatment. In 2016, there were more that 15.5 million cancer survivors living in the U.S. As we know, survivors face unique and ongoing challenges. In a recent study, by Cancer Support Community, cancer survivors reported challenges such as:

• Fear of cancer recurrence
• Long-term side effects (mental and physical)
• Economic burdens and financial hardship
• Distress levels in survivors are higher than those in people not affected by cancer
• Negative impact on social relationships
• Difficulty understanding the meaning of the cancer experience (spiritually)
• Depression was 14% more common and anxiety 29% more common in cancer survivors

In response to these challenges, CSC hosts support groups and educational workshops that many cancer survivors say they would recommend to others affected by cancer.

Many cancer survivors report having a lot of support during their treatment, but once treatment ended, it was hard to make a transition to a new way of life. Join our Survivorship Monthly Group the third Monday of each month from 6:30pm-8:00pm at David C Pratt Cancer Center to receive support in transition to your new “normal”. This monthly group helps work through feelings, challenges and navigating the “new normal”.

CSC also offers a monthly education session to connect those who are finished with treatment and figuring out what survivorship means through wellness in mind, body and spirit. Transition to Survivorship is the third Thursday of each month from 6:30pm-8:00pm and includes topics such as medical management, exercise, stress-management, and healthy eating.

CSC along with Siteman Cancer Center and Washington University School of Medicine invite you to learn ways to positively impact the survivorship experience after a diagnosis of pancreatic cancer. During the Surviving and Thriving: A Pancreatic Cancer Patient and Caregiver Workshop, experts will address various issues relevant to pancreatic cancer survivorship and caregiving. Join us September 28th from 11:30am-3:00pm at Eric P. Newman Center.

Join St. Louis Ovarian Cancer: “Survive & Shine”, a free event for ovarian cancer survivors and caregivers. Managing side-effects and distress, integrative therapies, genetics, and updates in treatment and research will be among the sessions to choose from. This event will take place September 23rd from 8:30am-1:00pm at the St. Louis Jewish Community Center.

As you move beyond cancer, it is important to continue to maintain a healthy lifestyle. To learn ways to nourish and move your body for optimum wellness, check out the monthly healthy lifestyle classes we offer.


April Cancer Awareness

(April 23, 2018)

Learn more about diagnosis, stages, and treatment of
Testicular Cancer, Esophageal Cancer, Head and Neck Cancer.


Caregivers need support too!

The Cancer Support Community believes that people who care about someone with cancer can actively enhance the health and wellness of their loved one and their relationships, without neglecting their own personal needs. CSC aims to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community.

Our Cancer Experience Registry reported caregivers are involved in the following ways:

• 98% provided emotional support
• 96% went with their loved one to medical appointments
• 82% helped with decision-making
• 79% coordinated medical care
• 80% provided transportation
• 74% helped manage finances

Cancer Support Community launched the Cancer Experience Registry: Caregivers in December 2014. Since then, more than 200 caregivers have added their voice to topics such as emotional and physical health, their involvement in medical care, direct and indirect costs of caregiving, access to resources and unmet needs. Add your voice!

Learn more about caring for a loved one and yourself through our Frankly Speaking About Cancer resources.

Caregivers are welcome to participate in any of our healthy lifestyle, stress management, education, and social activities. In addition, we invite caregivers to a twice monthly support group specifically for family and friends. This support group offers those supporting a person with cancer the opportunity to discuss common issues and learn new ways to cope with their individual stress as well as ways to support their loved ones living with cancer. For more information on how to join a support group please call 314-238-2000.

In our most recent satisfaction survey, our members who identify as a support person or family member report having the opportunity to find hope and meaning through participation in our programs. They also share that through support groups, education workshops, and movement classes, they feel more connected with others.

Our all cancer monthly group gives people with cancer and/or their family and friends the opportunity to share resources, ideas to manage side effects, and provides a chance to get and give support to others. Join us the third Tuesday of each month from 1:00PM-2:30PM at St. Anthony’s Cancer Care Center.

Need help after CSC St. Louis closes? To speak to a licensed counselor who can answer your questions and provide you with more resources on any type of cancer, call the cancer support helpline at 888-793-9355.


March Cancer Awareness

(March 23, 2018)

March is Multiple Myeloma, Colorectal and Kidney Cancer Awareness Month.
There is a whole community behind you.

Multiple Myeloma

There are more than 77,000 people living with multiple myeloma in the United States, making it the second most common blood cancer. Learn more about multiple myeloma through our Frankly Speaking About Cancer resources, an educational series that provides trusted information on a variety of topics important to people affected by cancer.

Cancer Support Community offers a multiple myeloma monthly group the second Tuesday of each month from 11:30AM-1:00PM at St. Louis University Hospital, Room 3302. This group connects you with other people with multiple myeloma and their family to learn about the unique experience of living with this diagnosis. For more information or support call us at 314-238-2000.

Join the Cancer Experience Registry today to share your experiences, identify issues that impact your life, access resources and learn from others who share your cancer journey. Learn more about research, outreach, and experiences of people living with multiple myeloma through the multiple myeloma specialty registry report. Together we can improve cancer care and make a difference.

Colorectal Cancer

Colorectal cancer is the third most commonly diagnosed cancer in the United State with about 90% of cases diagnosed in women and men age 50 and older. Visit our Frankly Speaking About Cancer series for more information.

Join one of our weekly support groups, offered to people with a cancer diagnosis who are in active treatment, for the opportunity to share thoughts, feelings, and information. Together, group participants experience warmth, understanding, support, and learn how to manage stress. For more information on how to join a support group please call 314-238-2000.

In our current satisfaction survey, our members with colon cancer report feeling they are better able to manage cancer related stress through participation in our programs. They also share that through support groups, education workshops, and movement classes, they feel more connected with others.

Kidney Cancer

Kidney cancer makes up about 4% of cancer in American adults, with most being over the age of 40. There are many ways to treat kidney cancer, including surgery, radiation, targeted therapy, immunotherapy, and chemotherapy. Learn more about diagnosis and treatments for kidney cancer.

Our all cancer monthly group gives people with cancer and/or their family and friends the opportunity to share resources, ideas to manage side effects, and provides a chance to get and give support to others. Join us the third Tuesday of each month from 1:00PM-2:30PM at St. Anthony’s Cancer Care Center.

Need help after CSC St. Louis closes? To speak to a licensed counselor who can answer your questions and provide you with more resources on any type of cancer, call the cancer support helpline at 888-793-9355.


February Cancer Awareness

(February 22, 2018)

February is Gallbladder and Bile Duct Cancer Awareness Month.
Learn more about diagnosis, stages, and treatment of bile duct cancer.

About 8,000 people in the United States are diagnosed each year. Although bile duct cancer is uncommon, there are universal experiences of living with cancer. Our weekly support groups offer people with a cancer diagnosis an opportunity to share thoughts, feelings, and information. These groups focus on:

1. Unwanted aloneness
2. Loss of control
3. Living with uncertainty
4. Shifting sense of hope

Together, group participants gain peace during uncertainty; connection during times of loneliness; and inspiration when hope seems lost. For more information and to schedule an appointment call us at 314-238-2000.

We can help you make a decision about treatment that is right for you – through Open to Options, an individualized decision support counseling program here at CSC. This program will help you; identify and organize your questions for your doctor, communicate in an organized manner with your medical team, and make decisions that best fit your personal desires and goals. Call us at 314-238-2000 to set up an appointment.

Need help after CSC St. Louis closes? To speak to a licensed counselor who can answer your questions and provide you with more resources on gallbladder and bile duct cancer or any type of cancer, call the cancer support helpline at 888-793-9355.

February is also National Cancer Prevention Month!

There are many factors which can cause cancer, not all are fully understood. Despite this uncertainty, there are some ways to decrease your risk of developing certain types of cancer.

• It is estimated that one third of United States cancer cases could be prevented through diet and exercise. Eating well and staying in shape are good steps towards preventing some cancers.

• One of the most important ways to prevent cancer is through genetic testing. Being aware of this information helps aid you in proactive decision-making.

• Regular screenings can lead to early detection of cancer. While visiting your doctor regularly does not prevent cancer, it can lower your risk of an advanced diagnosis.


January Cancer Awareness

(January 25, 2018)


January is Cervical Cancer Awareness Month.
Now is a great time to learn about HPV and cervical cancer.


It is estimated that nearly 13,000 women in the Unites States will be diagnosed with cervical cancer this year. Half of these cases occur in women ages 35-55. Cervical cancer, commonly cause by the humane papillomavirus (HPV), is often preventable with regular preventative screenings.

Learn more about diagnosis, stages, and treatment of cervical cancer.

Cancer Support Community offers a gynecological cancers monthly group the third Monday of each month from 6:30PM-8:00PM. This group discusses nutrition, coping skills, fear of recurrence, intimacy challenges, and genetic concerns. For more information or support call us at 314-238-2000.

A special workshop, Intimacy After Cancer, will be held Tuesday, February 13th from 6:00PM-7:00PM. Join Assistant Professor of Obstetrics and Gynecology, Becky Kaufman Lynn, MD, to address challenges associated with intimacy that individuals and their loved ones may experience after a cancer diagnosis.

Need help now? To speak to a licensed counselor who can answer your questions and provide you with more resources on cervical cancer or any type of cancer, call the cancer support helpline at 888-793-9355.

Join the Cancer Experience Registry today to share your experiences, identify issues that impact your life, take surveys, access resources and learn from others who share your cancer journey. Together we can improve cancer care and make a difference.


Open Art Studio: A New Space for Creativity

(January 23, 2018)

“I hope to provide a community space for people to be creative together.”
-Kaitlyn, Art Therapy Intern

Open Art Studio is a space where members can gather, think creatively, and work expressively with a variety of art materials. Our Art Therapy intern, Kaitlyn, will run the studio and help members express their creativity. Our hope is that members have time to connect with one another through the creative process.

Open Art Studio will be held Mondays from 3pm to 4pm beginning January 29th.


Open to Options

(January 19, 2018)

We can help you make a decision about treatment that is right for you—through Open to Options, an individualized decision support counseling program here at CSC.

Open to Options makes a difference! A member who was struggling with a treatment decision recently met with Kelly, one of our social workers, to build a list of important questions, concerns, goals, and priorities related to his treatment in preparation for an appointment with his physician. At his request, Kelly shared the list with his doctor ahead of the appointment. As a result, his doctor recommended rescheduling a few days later to have enough time to discuss his options and fully address his questions.

If you want help preparing for treatment discussions with your health care team, consider Open to Options. Contact Kelly O’Neal, MSW, LMSW at 314-238-2000 ext. 230 to learn more.


CSC is helping families take on cancer. You can too!

(December 28, 2017)

There are only a couple of days left in the year to give a gift! Make a difference in the lives of people facing cancer in our community – people like Justin and his family.

“CSC got me through one of the toughest times in my life.”
- Justin, CSC member

We were able to offer these life-changing programs to Justin, his family, and 1,300 other individuals in 2017 because of the generosity of individuals like you. Your gift will provide resources and opportunities for the next patient, caregiver or family who comes through our doors looking for support.


Birch Trees, Elephants, and Sunbeams

(December 04, 2017)

At Cancer Support Community of Greater St. Louis, empowerment, support and community are as represented in action as they are in the space.

Each group room includes natures elements of water, wind and air and were inspired by Michele Fiala to provide an oasis and connection.

The butterfly piece between Group Rooms 1 and 2, donated by a member’s father, reminds us “the love of beauty is one of nature’s healers.”

Further down the hallway, we see an elephant, a member of a community that inspires strength, gentleness, hope, compassion, and power.

The Community Gathering Room includes Birch Trees, a tree that thrives in community with other trees and represents renewal, protection, and new beginnings.

The sunburst in our logo, built of smaller rays that represent the many people and actions that give support and care, come together to bring comfort, support, and of course, Community.

As you come to CSC in 2018, our 25th year in St. Louis, we look forward to listening to the words Members use to describe their story, seeing the art used to represent connection, and participating in the action that builds community.


Stock Gifts and IRA Charitable Rollovers: Two Ways to Give Now

(November 29, 2017)

The market has been at an all-time high, which makes this a great time to donate stock! By directly gifting appreciated securities, you can make a more generous contribution than you might with cash. In addition, you may get an income tax deduction for the value of the donated stock without incurring any capital gains tax. Find out more about gifting stock to CSC.

An IRA Charitable Rollover is another timely giving option for individuals age 70-1/2 and older who still need to make a required minimum distribution from a traditional IRA. These individuals can donate a qualified charitable distribution directly to CSC through an IRA Charitable Rollover without having to first recognize it as income. It is often more tax-efficient than withdrawing the required amount and then contributing. Read more about IRA Charitable Rollovers.

Both options are great ways to invest in programs that help people facing cancer gain hope, knowledge and community! Please consult your tax or financial advisor for professional advice.



A Story of Gratitude

(November 13, 2017)

In the spirit of Thanksgiving, this month’s topic in our Families Connect Group was Gratitude. Families Connect is a program for the whole family when a parent, guardian, or grandparent is facing a cancer diagnosis. This program helps families address the physical, psychological, and emotional challenges of cancer, together.

During the session parents discussed ways to model gratitude to their children. “Even when life is hard, difficult or sad, there is still room for gratitude – it’s not either/or, it’s yes/and,” said Dannie Hodges, Program Manager. One of our facilitators led the children in an exercise where they made gratitude paper chains. They created a link representing the remaining days until Thanksgiving. On each link, the child wrote something they are grateful for and how they were going to share an act of kindness with the world or to themselves.

Kelly O’Neal, Program Coordinator, wrapped up the evening by hanging four posters throughout our building. Families visited each poster and filled in the spaces with words of gratitude. According to O’Neal, even our youngest members actively participated: “One of my kids said he’s thankful for activities that his whole family can do together despite his dad’s cancer.”

In the spirit of Thanksgiving, we appreciate every member of our community and everyone who makes it possible.



Exploring Connections Through Families Connect

(June 30, 2017)

Cancer affects the whole family. That’s why we have Families Connect, a program for the whole family when a parent, guardian, or grandparent is facing a cancer diagnosis. We offer our five pillars of support—support, education, healthy lifestyle/stress management, social opportunities, and resource and referral—within the context of the family to help them together address the physical, psychological, and emotional challenges of cancer.

A recent Families Connect program focused on resource and referral. “I think it is very important that individuals are aware of other organizations in our community, in addition to CSC, that are beneficial for families facing cancer,” says CSC Program Manager Dannie Hodges. To that end, we invited Jennifer Lang from Wings on Wheels, a mobile expressive therapy program offered by BJC Hospice, to lead families in expressive art play. Families came together to create wax candles with an inspirational message or hope inside that reveals itself as the candle burns down signifying the release of that inspiration or hope. They also made decorative silk flags as symbols of the love and connections they share.

Cancer Support Community of Greater St. Louis (CSC) is a non-profit organization whose mission is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community to enhance their overall well-being. All programs are offered at no charge in a comfortable, home-like environment. Cancer Support Community offers professionally-led support groups, educational workshops, healthy life-style and stress-management classes, and social connections to empower and educate individuals affected by cancer.


How Do Your Genes Fit?

(April 26, 2017)

Cancer Support Community of Greater St. Louis (CSC), Sharsheret, Myraid Genetics, and St. Louis Ovarian Cancer Awareness (SLOCA) are proud to partner for a three-part educational series called How Do Your Genes Fit? The series will kick off at The J – St. Louis on April 27th with a reception and presentation from Suzanne Mahon DNSc, RM, AOCN, APGN, providing an introduction to what we know about genetics and cancer. The evening will end with a “pre-vivor” and cancer survivor discussing the balance of knowing and choosing a path to wellness.

One of our featured speakers, Dawn, was diagnosed with breast cancer seven years ago, at age 35. Unfortunately, cancer runs in her family. Of her eight aunts, seven have tested positive for the BRCA 2 mutation. Last month she lost her mother to ovarian and breast cancer and believes that if her family had known about this genetic mutation, her mother would still be alive. She hopes to share her story and make others aware of this genetic mutation. As Dawn states, “Knowledge is power”.

The series continues May 10th with a class about food choices that can help promote health and wellness. The series will conclude June 14th with a workshop by Jennifer Kane, DC, who will give you the chance to explore ideas for self-care to improve health during and after cancer treatment. Some examples will include exercises such as yoga, qi gong, acupressure, diet, and even the importance of breathing.

Cancer Support Community of Greater St. Louis (CSC)
is a non-profit organization whose mission is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community to enhance their overall well-being. All programs are offered at no charge in a comfortable, home-like environment. Cancer Support Community offers professionally-led support groups, educational workshops, healthy life-style and stress-management classes, and social connections to empower and educate individuals affected by cancer.

 


There Is Healing In The Lyrics At Cancer Support Community

(February 22, 2017)

“Each person has a story to be told, a voice to be heard, and a song to sing.”
                      - Tracie Sandheinrich, Kids Rock Cancer music therapist

The families of Cancer Support Community Families Connect Program experienced the power of community music making first hand during Healing in the Lyrics, a special Families Connect night. A board certified music therapist worked with families to transform feelings and stories into song. This therapeutic song writing process is an intervention that helps kids to express their feelings in a safe and spontaneous way. Families come together to create a special memory; as Tracie Sandheinrich, Kids Rock Cancer Music Therapist shared, “For many, this becomes a cherished, tangible token and memory for families that can be unbelievably powerful.”

With a common mission to assist the Whole Family the Whole Time, Cancer Support Community’s Families Connect and Maryville University’s Kids Rock Cancer partnership has enabled Kids Rock Cancer to offer therapeutic songwriting services with a board certified music therapist to families affected by a cancer diagnosis at Cancer Support Community at no charge. “This has helped so many patients and families gain self-esteem, a safe place to process their feelings and emotions, and also provide them with an opportunity to communicate effectively about their illness. There is nothing more powerful to me than to see the emotional transitions I am lucky enough to witness during one of these sessions.”

Cancer Support Community of Greater St. Louis (CSC) is a non-profit organization whose mission is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community to enhance their overall well-being. All programs are offered at no charge in a comfortable, home-like environment. Cancer Support Community offers professionally-led support groups, educational workshops, healthy life-style and stress-management classes, and social connections to empower and educate individuals affected by cancer.


What’s New In Our Garden

(February 21, 2017)

Cancer Support Community is excited to partner with Missouri Botanical Garden to expand the use of our Inspiration Garden. The inspiration for our garden is to help connect our community through growing and working together. During its first year in 2016, the garden provided fresh produce used in our healthy cooking classes and harvested by members for personal use. This year the use of the garden will be expanded to incorporate our entire CSC Program including support, education, healthy lifestyle, and social connections. Although the garden will consist of beautiful plants and flowers this year, there will be a small herb section to use in our cooking classes. Members experienced a sneak peek of what an educational class could look like by learning the multiple uses of lavender and creating take home lavender sachets. We are thrilled to see the fruits of our labor this year.

Cancer Support Community of Greater St. Louis (CSC) is a non-profit organization whose mission is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community to enhance their overall well-being. All programs are offered at no charge in a comfortable, home-like environment. Cancer Support Community offers professionally-led support groups, educational workshops, healthy life-style and stress-management classes, and social connections to empower and educate individuals affected by cancer.

 

The first of new Star Wars events for the entire family comes alive at Cancer Support Community.

(February 10, 2017)

In a galaxy far far away, Cancer Support Community of Greater St. Louis held an epic family night where the Star Wars film saga came to life. Families took a unique journey into the Star Wars universe through this one of kind experience. Our mission was to give the whole family an unforgettable night. The voyage began with iconic characters from the 501st Legion greeting community members from our Families Connect program. Their legendary trek was filled with photo ops, popcorn, cookies, and plenty of fun. As one member shared, “We love coming here. This is a fun family event we can share with other families.”

Families Connect is a program offered by Cancer Support Community specifically for children and teens who have a parent, guardian or grandparent with a cancer diagnosis. One mother said, “This is a wonderful place to help navigate through the new normal.” Here at CSC we believe that no one should have to face cancer alone. This force is stronger than ever.

Cancer Support Community of Greater St. Louis (CSC) is a non-profit organization whose mission is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community to enhance their overall well-being. All programs are offered at no charge in a comfortable, home-like environment. Cancer Support Community offers professionally-led support groups, educational workshops, nutrition and exercise programs, and stress-reduction classes to empower and educate individuals affected by cancer.

    


The Whole Family, the Whole Time: Our New Families Connect Room and the St. Luke’s Family Resource Library

(July 15, 2016)

Cancer Support Community will introduce the Families Connect Room and St. Luke’s Family Resource Library, funded in partnership with St. Louis Men’s Group Against Cancer and St. Luke’s Hospital, with an Open House and Ribbon Cutting Ceremony on Monday, August 1st from 5:30 -7:00 PM at CSC, 1058 Old Des Peres Road, St. Louis, 63131. Please call 314-238-2000 to RSVP.

The new Families Connect Room and St. Luke’s Family Library, funded by St. Luke’s Hospital through the St. Louis Men’s Group against Cancer, will provide additional support and resources, not only for families with a parent or adult caretaker with cancer who are in our Families Connect group, but also for families in that same situation who have children under five years old who are too young for the family group.

One CSC Member, Justin, found the new family library helpful when revealing his cancer diagnosis to his three-year-old son and shared; “When I got my diagnosis, I was worried about a lot of things, especially what to say to my son, who was three at the time. CSC's library has been a tremendous resource for our family. We've found books that help us talk to him in an age appropriate way about what was going on with me. My wife and I are grateful that we had access to these resources that helped him process his own feelings and have a sense of control during what's been a really uncertain time.

This family friendly room hosts a variety of materials to support the whole family, the whole time. Books are available for children, teens and adult caretakers addressing cancer education, coping skills, emotions, bereavement, stress management and survivorship. Families will be able to take workbooks, stress management supplies, and enjoy the special space designated just for families with children and teens.

Providing resources through the Families Connect Room and St. Luke’s Family Library is another way we can serve families as part of our overall Families Connect Program for families impacted by cancer with children and teens, which includes support groups like the Families Connect Monthly Networking Group and Kid Support™, educational programs such as how to talk to children and teens about cancer, healthy lifestyle/stress management programs like family yoga, and social opportunities.


VP Biden’s Cancer Moonshot Leads to Local Partnership

(July 13, 2016)

 

On June 29th, Vice President Biden convened a Cancer Moonshot Summit, including conversations in communities across the United States. These Summits were the first time that individuals and organizations representing the entire cancer community and beyond – researchers, oncologists, care providers, philanthropists, data and tech experts, advocates, patients and survivors – have all convened under the national charge to double the rate of progress toward a cure.

Locally, Cancer Support Community, American Cancer Society, and American Cancer Society Cancer Action Network partnered together to take action against cancer as part of Vice President Biden’s Cancer Moonshot through the St. Louis Cancer Moonshot Summit. The St. Louis Moonshot Summit was an opportunity to share updates and discuss efforts to accelerate LOCAL progress in cancer prevention, diagnosis, treatment, and care while keeping the patient experience at the front of the conversation.


Every day at CSC we see the power of Community in improving lives of people affected by cancer. It is always a good reminder to see that the power of Community extends to developments in treatment of cancer as well,” said CSC Program Director Renata Sledge, LCSW.

Eighty local cancer survivors, doctors, volunteers and their families gathered to watch Vice President Biden make remarks on the status of the National Cancer Moonshot and listen to the panel discussion with cancer experts including speakers from CSC and ACS.

On the panel, CSC Program Director Renata Sledge, LCSW, discussed the patient experience with clinical trials and how it’s changed. She shared information and statistics from the Cancer Support Community report, Refreshing the Dialogue on Clinical Trials. Thirty years ago if you had asked people facing cancer what they thought about participating in a clinical trial, you would probably have heard responses like this. “I am worried about being a guinea pig or a lab rat.” “I don’t want to take the chance of getting a placebo.” “I don’t think there is any real benefit for me.” Or, “I don’t trust the medical profession.”

Since that time, there has been steady (and in some cases amazing) progress in improving the outcomes of treatment for many cancers. Every step of that progress is the result of cancer clinical trials. Designed to make sure new therapies are safe and effective, clinical trials are the engine that drive cancer progress. Patients who join these trials have access to the newest therapies and excellent care. By joining a clinical trial, they give themselves hope for longer and better lives. They also contribute to better cancer treatment for others facing cancer.

The good news is that more and more people are considering a cancer clinical trial when they are first diagnosed – and that helps speed up breakthroughs in cancer care. But there is clearly a need for more people to learn about and consider this option. Cancer Support Community will address this need by offering an educational workshop, Frankly Speaking about Cancer Clinical Trials, October 29th, with speakers from Siteman Cancer Center and St. Louis University Cancer Center. Call 314-238-2000 for more information.


New Inspiration Garden Provides Community, Healthy Food and a Place to Gather

(July 11, 2016)

A long-time dream of the organization and of one Board member especially, our new Inspiration Garden, donated by CSC Board Member Robin McClanathan, was designed and built in the Fall of 2015. The garden now provides a space for members and volunteers to socialize and collaborate to grow flowers and plants for enjoyment and veggies and herbs for healthy cooking in Miss Mary’s Healthy Kitchen Programs, and so much more!

CSC Program Coordinator, Dannielle Hodges, MSW, LCSW, who’s worked closely with the Garden Club, spoke about the garden’s role in our community; “The Inspiration Garden has provided so many opportunities for our members to come together in community whether it be the planning and sharing of ideas, to physically working together as a team and now enjoying the fruits of that labor. This garden has allowed members to share their horticultural, creative and artistic talents with one another and to contribute to the community by providing produce for nutrition classes and whoever wants to enjoy it.

While waiting for the Spring ground-breaking, Garden Club members met frequently to plan, design and gather supplies. In April, CSC Garden Club member Marsha Phillips secured a donation of bags of soil, fertilizer, compost and other garden supplies from Lowe’s in Arnold, where she works. We are grateful to Store Manager Brian Andrasko and Lowe’s for these useful supplies. In April, Garden Club members also went on working field trips to our partner, EarthDance Organic Farm School ‘s location, for hands-on education including weeding, mulching, planting and clean-up.

After months of planning, on May 27th, our Garden Club members broke ground on our Inspiration Garden located in the courtyard by our Miss Mary’s Kitchen. With the help of Kaitie Adams, Volunteer Coordinator at EarthDance Organic Farm School, members planted our first round of vegetables, herbs and flowers in our garden. In June and July, Garden Club members have enjoyed harvesting vegetables and sharing them with the community. Vegetables are shared with members in a basket in our kitchen.

The Inspiration Garden has been woven into all of our Programs and community. During a recent New Member tour, Program Director Renata Sledge witnessed other group members enjoying a salad made from freshly harvested vegetables. Last month, Families Connect Monthly Networking Group members worked with teaching artist Maria Ojascastro on artistically claiming their own space in the garden and planting ingredients to top their pizza at a future Families Connect meeting!

Our next big garden milestone will be our Garden Club Harvest Gathering on Wednesday, September 28 from 6:30 – 8:00 PM. Join us and celebrate while we sample the produce from the garden and honor the work and connections we have made in the Inspiration Garden.


The Member Experience: 2015 Program Survey Results

(July 08, 2016)

At Cancer Support Community we say that we “empower lives” and “inspire hope”. How do we do achieve those lofty goals? CSC offers up to 16,379 hours of programs equating to over $982,740 of professional service to our members annually at no charge to them. Since 2010, we have also measured quantitatively and qualitatively how well we are serving our members and how the lives of members are affected by attending our programs through our annual program survey so we can continue to make improvements and adjust to best serve our members.

Our members shared that some of the ways our programs benefited their lives are that they feel more connected to others, are more able to access community resources, have opportunities to find hope and meaning, are better able to express their full range of emotions, and feel more empowered to make informed health related decisions.


Often someone facing a cancer diagnosis finds that even family and friends may not understand what they’re going through. One CSC member shared that “I can come here and be understood. This place offers programs that help me cope with life as it comes…” and another shared that CSC is “such a comfortable place to experience new things or to delve deeply into complex issues. It is a place where people “get it.”


From the moment of diagnosis through treatment and beyond, the effects of cancer aren’t only physical – there is a profound emotional and social impact as well. Joining a community of people who have experienced cancer firsthand can decrease the sense of isolation and empower you as you live with cancer. Another CSC member shared that CSC “was my lifeline. It kept me going.”


Our 2015 annual program survey showed that member satisfaction with programs remains high and the experience overall was a 4.82 out of 5, where 1 is “Not at all satisfied” and 5 is “Very satisfied". It’s great to measure program satisfaction and gather feedback, but how do we use these results? Our program department analyzes our annual program survey results and anecdotal feedback and integrates information about program satisfaction, perceived benefit and demographics into our Individualized Wellness Plans and program planning.


Your support allows us to offer quality programs managed by licensed mental-health professionals and to continue to measure and improve them based on participant feedback so we can continue to empower lives and inspire hope in the community.


Cancer Support Community Builds a New Website, Designed with the User in Mind, with the Help of the Staenberg Family Foundation

(June 10, 2016)

 

With the help of a matching grant from the Staenberg Family Foundation, Cancer Support Community worked with Hier Intelligence on designing a new website to better tell our organization’s story to our friends, members, donors and partners.

Cancer Support Community’s new website has an updated look and is easier to navigate. The new site has fewer navigation categories (easier to follow categories like Get Support/Give Support) and is less text heavy -- making it easier for people to find our programs, services, events and how to donate and volunteer.

In the header of every page above the navigation bar, we have social media icons on the top left and the “Donate Now” button on top right, and on the footer of every page, we have our contact information and email sign up, so that people can easily find where to donate and connect with us.

Our website now has responsive design so that it automatically resizes and looks and works correctly in mobile phones, tablets, and desktop computers and the Donate Now button stays in prominent upper right spot. With 80% of internet users owning a smartphone and 51% of internet time spent on mobile devices*, this is an important update Cancer Support Community has needed to be more accessible to the public.

Our website has a scrolling image bar at top of homepage highlighting our news, upcoming featured programs and fundraising events allowing us to better promote our organization, programs and fundraising activities.

Every page now has scrolling bar of community partner logos that will link to those companies who are our top supporters allowing us to recognize our key donors.

Additional features on our new site through our Neon CRM software are a program calendar that links to program descriptions and register links, improved donation forms and improved program registration form with the ability to register for more than one program at a time and ability to register more than one person at a time.

Our hope is that our new website, designed to make everything easier for the user, helps people find us and find out about our programs, services and events for people impacted by cancer in St. Louis.

*Source: State of mobile marketing 2015 report by Mary Meeker via Kleiner Perkins Caufield & Byers


Nominate a Pharma Hero and Support CSC

(April 01, 2016)


At the beginning of 2016, UBC, an Express Scripts Company, launched the Pharma Heroes Program. Designed to shine a light on the heroes of the pharma and biotech industry, the Program celebrates the remarkable and largely unrecognized daily acts that move the industry forward.


Throughout this year, anyone can nominate a Pharma Hero online by visiting www.PharmaHeroes.com. For each nomination, UBC will notify the Pharma Hero and donate $25 to Cancer Support Community. It’s a great way to recognize individuals who go above and beyond, but rarely seek attention for their efforts—and to help those facing cancer in St. Louis. We are thrilled to be involved!


Our Community Partners
Emerson
Mercy
Staenberg Family Foundation
Land Dynamics
Wolff Shoe Co